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Keep up to date with our research, news and events

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October Newsletter

Dear friends,

It is an exciting time as the findings from our FCDO funded PENDA starting are continuing to emerge! This month a new outcome paper is published in BMJ Open. Deworming programmes, like many child health programmes, often operate through schools. The problem is that children with disabilities are often excluded from schools and so may not benefit from these programmes. Our findings showed that children with disabilities were about half as likely to be enrolled in school. Coverage of deworming would therefore have been much worse for children with disabilities if the programme had only focussed on those attending school. However, in this intervention in Malawi additional attempts were made to cover children out of school both through the school-based dissemination and in community-dissemination. Consequently, the study results show that coverage levels were generally not lower for children with disabilities. This intervention teaches a valuable lesson that efforts to promote inclusion in school healthcare programmes can work to promote equity.

Congratulations to Goli Hashemi, who has passed her PhD viva subject to minor corrections! Her research focussed on the experience of adults with disabilities in Guatemala and their access to healthcare. The work involved a qualitative systematic review, qualitative research to understand how people with disabilities make healthcare decisions, the perceptions and experiences of healthcare providers and how community based rehabilitation projects can help build links between people with disabilities and healthcare services. Well done Goli!

There is still time to submit your abstract to the 8th International Conference on Disability and Development – “Strengthening Research and Evidence on Disability”, co-hosted by ICED and PRASHO. The conference will be held in Hyderabad, India, 23-24 November, 2024. Registration is open until 31 October, and abstract submission until 30 September. More information here . The keynote speaker is confirmed as Dr. Zelalem B. Taffesse, the UNICEF Chief of Field Office for the States of AP, Karnataka and Telangana.

Do join us for our two webinars this month!

With best wishes,

Hannah and Tom

PENDA logo 300

PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools. We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners. 

We have updated our website - so check it out to find more information about all our work!

In news this month…. Training is complete and data collection is starting soon for a new PENDA trial. This trial will explore whether a mainstream primary school-based violence prevention intervention in Morogoro in Eastern Tanzania is also effective for children with disabilities. This is an important topic as evidence shows that children with disabilities are 3-4 times as likely to experience violence compared to children without disabilities, however there is a lack of information on what works to prevent violence amongst children with disabilities. For instance, a recently completed systematic review by our group (led by Emily Eldred) found of 160 trials of school-based violence programmes globally, but only 3 disaggregated impacts by disability.

Our next Penda-supported conference is the 8th International Conference on Disability and Development – “Strengthening Research and Evidence on Disability” in Hyderabad, India, 23-24 November, 2024. Registration is open until 31 October, and abstract submission until 30 September. More information here. 

Publications

Papers this month from ICED!

It is always exciting when an ICED PhD student publishes the first PhD paper, even if like Emma they have published many times before! Emma Jolley assessed the “Differences in need for and access to eye health services between older people with and without disability” through a cross- sectional survey in four districts of northern Uganda, and published the findings in PLOS Global Public Health. She showed that there is a high co-occurrence of visual impairment and self-reported functional difficulties, but (perhaps surprisingly) that functional difficulties are not associated with lower access to services.

A new PENDA outcome paper is out - Disability in childhood and the equity of health services: a cross-sectional comparison of mass drug administration strategies for soil-transmitted helminths in southern Malawi published in BMJ Open.

We are all keenly aware of how the Gaza conflict has had devastating impacts, including on the health of the population. Our paper published this month in Plos Global Public Health, by Islay Mactaggart and others, reports on a national survey of visual impairment, diabetic retinopathy and disability in adults aged 50+ in Palestine, conducted in 2018. It shows that even before the conflict there were high levels of disability-related needs. Overall, among people aged 50+, 26% had visual impairment, which was avoidable for more than 80% of people, one third had diabetes, and 24% had disabilities.

Another PENDA paper this month focussed on Prevalence of Functional Difficulty Among School-Aged Children and Effect on School Enrolment in Rural Southern India: A Cross-Sectional Analysis in the Journal of Epidemiology and Global Health. Encouragingly, the vast majority of children – whether disabled or not – were enrolled in school. However, children with disabilities were 4.6-fold times more likely not to be enrolled in school!

Hannah Kuper and colleagues from Brazil published on Inclusion of disability in primary healthcare facilities and socioeconomic inequity in Brazil in Review Saude Publica. Brazil has implemented a scheme to provide more funding to health centres that perform well, and the evidence from this study suggests that this scheme encouraged improvements in the accessibility of primary healthcare facilities and availability of disability-related care.

Tom Shakespeare and colleagues reported on Preferences for sexual health services among middle-aged and older adults in the UK: a discrete choice experiment in the journal of Sexually Transmitted Infections. It highlighted the importance of offering sexual health services through face-to-face consultations. 

Upcoming Seminars and Events by LSHTM

ICED webinars:

October 16, 1-2 pm. UK time. Inaccessible Access: How academia excludes disabled people and what we can do about it (Webinar). Mark Carew and colleagues - Ms. Harshadha Balasubramanian, Dr Julia Modern, Dr Kelly Fagan Robinson. In this ICED seminar, panellists from academia including those with lived experience of disability will share their experience learning and working in higher education and how barriers to disability inclusion in academia can be confronted. 

October 23, 1-2 pm. UK time. Working with traditional healers to transform beliefs about disability. Explore ​how to approach working with traditional healers to support transformation of beliefs about disability at a community level. ​Lucky Mahenzo, from Kupenda and Kuhenza for the Children, will share experiences from their disability training programme for traditional healers.  

Other webinar series related to disability research:

  • 30 October. 5:30 p.m. EST (10:30 p.m. UK): Advancing Health Equity through Disability Inclusion. A conversation with Rich Besser, Rebecca Cokley, Teresa Nguyen. Brandies Lurie Institute for Disability Policy. Register here.

Disability Inclusion SRHR Webinar Series: All 8-9:30 a.m. UK time. For further information (including registration), email here.

  • 23 October - Building an action plan for inclusive SRHR service delivery
  • 27 November - Building inclusive SRHR policy and practice – Commemorative Webinar for International day for persons with disabilities

You can find all our previous seminars (including the audio recordings and slides) here.

Other things of interest

Work Experience Programme at ICED

We are currently not taking on new candidates however, you are welcome to complete an online application to register interest in interning with ICED. Please complete the application form.

Have you seen this?

October 6 is World Cerebral Palsy Day! Get ready to celebrate with this video by the fabulous Tim Renkow – a comedian with CP - who the ICED crew were delighted to see in action last month.

 
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Work experience with ICED

Over the last few years, we have had candidates contribute to our research projects by undertaking surveys, writing systematic reviews, completing desk research and much more.

We are currently not taking on new candidates however, you are welcome to complete the application below for potential future openings.

The programme is for candidates to gain work experience in research within an academic setting. We will strongly consider the following applicants:

  • People with disabilities
  • An interest in pursuing a career in research
  • Preference given to people from LMICs
  • People holding a Bachelor’s degree (minimum), ideally a Master’s degree.

Please complete the application form for consideration.

Talks

ICED talks

Professor Anne Kavanagh: Improving the lives of people with disabilities and the availability of disability data in Australia

Professor Anne Kavanagh gave a talk about her work on improving the lives of people with disabilities and the availability of disability data in Australia.

The webinar is available to watch here.

About the speaker and seminar:

Professor Anne Kavanagh is a social epidemiologist who is an international leader in health inequalities research. She is the inaugural Chair of Disability and Health and Head of the Disability and Health Unit in the Centre for Health Equity, Melbourne School of Population and Global Health.

Data on disability is a persistent gap in health equity research. Few countries have systems that enable them to examine the health inequities of people with disabilities, yet recent initiatives in Australia are helping to uncover these overlooked health inequities.  Join the International Centre for Evidence in Disability as it hosts Professor Anne Kavanagh to discuss her work on improving the lives of people with disabilities and the availability of disability data in Australia. This session will be held in-person and online and is open to all individuals wishing to learn more about data and health inequities for people with disabilities. 

Film

Disability-Inclusive Education and Employment

This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.  

The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation. 

Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.

Ubuntu

COVID-19 Support and Guidance

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Animated videos

Animated videos on child development and developmental disability

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

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View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

Film

Supporting Families Affected by Zika virus

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Global Community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and Resources

Press articles

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.

Download full course

Full course ZIP (2GB) |ZIP (no videos) (182MB)

Download content from each week
Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

Video: Welcome to week 2