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January Newsletter
Dear friends,
Happy new year! We hope that you had a wonderful holiday. We are very excited about all that 2025 will bring to us at ICED. Key highlights are the forthcoming Global Disability Summit in Berlin in April, which we are excited to attend. Another highlight will be the launch of the new Global Disability Inclusion Report, which many at ICED have contributed towards, in particular Morgon Banks. Finally, 2025 marks 15 years of ICED, and we are planning a range of events in the summer, to mark this milestone and reflect on our achievements and future plans. Watch this space!
We ended the year well at 2024 with good news on our doctoral students. Winston Chin passed the first part of his DrPH on “Disability in Nepal: The lived experience of physical disability and access to rehabilitation services in Dang District”. Danae Rodriguez’s PhD fully passed her PhD on inclusion of people with disabilities in the health system in Chile – congratulations Dr Rodriguez!
Empty diary? Join us for two seminars in January – January 20 Tom will present in person at LSHTM on January 20, 17:30-18:30. "Changing thinking about disability" by Tom Shakespeare.” Then on January 28, 10-11 a.m. join us for the webinar on Building Resilience: Co-Developing Disability-Inclusive Climate-Resilient WASH Principles in Bangladesh.
Read on for more ICED news!
With best wishes,
Hannah and Tom
PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools. We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners.
We have updated our website - so check it out to find more information about all our work!
This month we will be visiting Tanzania, to support the trial on how to reduce school-based violence for children with disabilities. We will also be going to Uganda, both to observe the community groups working to improve access to healthcare for people with disabilities, and to disseminate the findings from the Uganda Disability Inclusive Poverty Graduation programme.
Publications
Papers this month from ICED!
ICED PhD student Luthfi Azizatunnisa’ published her first PhD paper - Access to health insurance amongst people with disabilities and its association with healthcare use, health status and financial protection in low- and middle-income countries: a systematic review in the International Journal for Equity in Health. She found limited quality evidence, and will try to help fill the gap with the research from her PhD.
Veronika Reichenberger and team published the final paper from her recent PhD - Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study in Qualitative Health Research. You can see the participatory videos (9 minutes) created here – which were conceptualized and filmed by people with disabilities and their carers to share their experiences and stories regarding access to healthcare.
Tracey Smythe joined colleagues to publish Prioritizing infant mental health: a research-driven pathway for action in Nature Medicine.
Hannah Kuper and Sara Rotenberg wrote the commentary Closing the mortality gap for people with disabilities in Lancet Public Health in response to the article by Yang et al on All-cause and cause-specific mortality inequalities between people with and without disability: a nationwide data linkage study in Australia.
Sarah Polack and colleagues published A situational analysis of rehabilitation policy and systems in Brazil in SSM- Health Systems, which used a structured framework to assess the strengths and weaknesses in the current situation in Brazil.
Tracey Smythe and colleagues also sought to explore the feasibility, acceptability, and contextual fit of a pathway for managing at-risk infants and their mothers in Ethiopia in the article “Strengthening implementation of integrated care for small and nutritionally at-risk infants under six months: pre-trial feasibility study.” In the journal Maternal & Child Nutrition.
Mark Carew and Tom Shakespeare and Antony Mugeere published Qualitative process evaluation of a disability-inclusive ultra-poor graduation programme in Uganda in the African Journal of Disability. In this paper they described the findings from the process evaluation of a disability-inclusive poverty graduation intervention implemented in Uganda.
In November, Mark Carew was an invited speaker at the 2024 ENT UK Global Health Conference and he wrote a short article based on the presentation for the conference journal - “Nothing About Us, Without Us.” The importance of advocacy for disability-inclusive healthcare published in Global Health Journal.
Upcoming Seminars and Events by LSHTM
ICED webinars:
- January 20, 17:30-18:30. "Changing thinking about disability" by Tom Shakespeare." John Snow Lecture Theatre, LSHTM (in person only, recording released at later date).
- January 30, 10-11 a.m. UK time. Building Resilience: Co-Developing Disability-Inclusive Climate-Resilient WASH Principles in Bangladesh. Chair: Rosie Green; Panel members: Jane Wilbur, Sari Kovats (LSHTM), Shahpara Newaz (icddr,b), Sabiha Ahmed (WVB) via Zoom.
Other webinar series: - The Stellenbosch University Disability Research Hub empowers disability researchers by fostering collaboration and connection. We will resume our monthly webinar series on February 20th and continue creating opportunities to share insights, spark innovation, and build lasting partnerships in the field. Our programme will be in the next ICED newsletter and we look forward to you joining us!
You can find all our previous seminars (including the audio recordings and slides) here.
Other things of interest
- Check out the newly updated website of the Missing Billion Initiative! It includes more information on the projects and tools, and also a new report on “Empowering health workers with artificial intelligence”.
- New Podcast for NEJM – on the need for improved training and increased comfort in treating autistic people.
The Lurie Institute at Brandeis University has launched two Disability Data Dashboards:
- Parents with Disabilities Data Dashboard: Who are disabled parents? Which US States support disabled parents? What US States terminate parental rights based on disability?
Work Experience Programme at ICED
We are currently not taking on new candidates however, you are welcome to complete an online application to register interest in interning with ICED. Please complete the application form.
Have you seen this?
Who benefits from accessibility? Everyone (30 second video)!
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2013
ICED talks
- Disability History Month - Disability Identity and Employment Policy: Past and Present
Our own Professor Tom Shakespeare and Dr Mark Carew spoke at an insightful event, "Disability Identity and Employment Policy: Past and Present". They explored the evolution of the social model of disability, disability rights, and workplace inclusivity.
The session highlighted employment policies and discussed the challenges that remain for disabled people. Through open discussions with an expert panel, the auidence gained a deeper understanding of how historical perspectives and disability identity inform current policies and challenges.
Speakers:
- Professor Tom Shakespeare
- Dr Mark Carew
- Dr Gareth Milward (external guest speaker)
- Dr Helen Strongman (Event Chair)
Date: Wednesday 11th December 2024
Recording: Please click here to view the recording.
Work experience with ICED
Over the last few years, we have had candidates contribute to our research projects by undertaking surveys, writing systematic reviews, completing desk research and much more.
We are currently not taking on new candidates however, you are welcome to complete the application below for potential future openings.
The programme is for candidates to gain work experience in research within an academic setting. We will strongly consider the following applicants:
- People with disabilities
- An interest in pursuing a career in research
- Preference given to people from LMICs
- People holding a Bachelor’s degree (minimum), ideally a Master’s degree.
Please complete the application form for consideration.
Disability-Inclusive Education and Employment
This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.
The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation.
Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.
COVID-19 Support and Guidance
The situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available.
- Information on how parent groups have been run post ‘lock-down’ in Rwanda
- Guidelines on what to consider to run groups safely in the context of COVID-19
- A range of free digital COVID-19 educational resources for children: download Axel Scheffler’s book, download a copy of Lydia Monk’s book
- Share your story and contribute to voices of people with disabilities during the COVID-19 outbreak: voices
- LSHTM’s free online course for anyone who is interested to learn about what we know about COVID-19, and how we should respond to the outbreak
- A course that introduces COVID-19, created for teenagers and young adults
- Presentation from the International Centre for Evidence in Disability: making the response disability-inclusive
- Paper on what we can learn from a disability inclusive response
- Working with parent groups – a training resource for facilitators and caregivers
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These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.
It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.
Download the manual (in various languages)
“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.”
Parent, Sirajganj, Bangladesh
Animated videos on child development and developmental disability
Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community.
Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.
The videos are available in English, Portuguese (Brazil) and Spanish.
View the English videos below:
View the English videos with subtitles here:
- Child development video with English subtitles
- Developmental disability video with English subtitles
View the Portuguese (Brazil) videos with subtitles here:
- Child development video with Portuguese (Brazil) subtitles
- Developmental disability video with Portuguese (Brazil) subtitles
View the Spanish videos with subtitles here:
Supporting Families Affected by Zika virus
Children with developmental disabilities and their families
Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.
Community Ear and Hearing Health Journal
This annual publication promotes good ear and hearing health in low and middle-income countries.
It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.
- Read previous issues
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- Issue No. 21 (2020) Ear and hearing care in the midst of a pandemic
- Issue No. 20 (2019) Noise-induced hearing loss
- Issue No. 19 (2018) Hearing aid systems in low-resource settings
- Issue No. 18 (2017) Focus: Ear and Hearing Health in Schools
- Issue No. 17 (2016) Common ear conditions underdiagnosed at primary level
- Version Française No. 3 (2021) Soins de l’oreille et de l’audition en temps de pandémie
- Version en Español No. 2 (2021) Cuidado del oído y la audición en media de una pandemia
- Version française No. 2 (2016) Sensibiliser la communauté à la santé de l’oreille et de l’audition
- Version en Español No. 1 (2016) Abordando los problemas de oído
- Version française No. 1 (2015) Lutter contre les affections de l’oreill et de l’audition au niveau primaire
- Issue No. 16 (2015) Testing small children’s hearing with little or no equipment
- Issue No. 15 (2014) Early detection of hearing loss in newborn and preschool children
- Issue No. 14 (2014) Living with hearing impairment
- Issue No. 13 (2013) Increasing community awareness of ear and hearing health
- Issue No. 12 (2012) Addressing ear and hearing problems at primary level
- Issue No. 11 (2011) Projects in the Philippines
- Issue No.10 (2010) Less noisy cities Issue No. 9 (2009) Noise: an ubiquitous pollutant
- Issue No.8 (2008) Tinnitus: a common and manageable complaint
- Issue No.7 (2008) Screening for hearing impairment
- Issue No.6 (2007) Chronic suppurative otitis media: a disease still waiting for solutions
- Issue No.5 (2007) Rehabilitation of the deaf and hard of hearing
- Issue No.4 (2006) Deafness caused by ototoxicity in developing countries
- Issue No.3 (2006) Congenital infections and hearing impairment
- Issue No.2 (2005) Current practice for ear syringing
- Issue No.1 (2004) Congenital deafness in developing countries
Press articles
Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.
- Read press articles on our work
-
- Disability in the Global South Journal focusing on Disability and the SDGs, edited by Hannah Kuper and Shaun Grech. July 2017
- National Survey of Disability in Guatemala 2016 – Case Study, International Institute for Sustainable Development, June 2017
- Hannah Kuper discusses the exclusion of children with disabilities from education around the world – Al Jazeera News Hour (live), 18 August 2015
- Many disabled children in poorer countries left out of primary education – The Guardian, 18 August, 2015
SciDev.net columns
- February 2016: ‘Zika babies’ need support now
- January 2016: Kids at risk from El Niño
- December 2015: Monitor birth defects to save lives
- November 2015: Rethink healthcare for the ageing world
- October 2015: Defend girls’ sexual health rights
- September 2015: Reshape mental healthcare in crises
- August 2015: Give SDG monitoring some bite
- July 2015: Community care cuts NTD burden
- June 2015: Better data on disaster victims
- May 2015: A better way to find disabled kids
- April 2015: The next hurdle for Ebola survivors
- March 2015: Universal Health Coverage: Bearing the Brunt of Violence
- February 2015: Reaching Patients with Smartphones
- January 2015: Universal Health Care can happen
- December 2014: HIV and Disability November 2014: Ageing and Disability
Global Health and Disability
All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.
- Download full course
- Download content from each week
-
- Week 1: Disability and its importance to the global development agenda
ZIP (522MB)|ZIP (no videos) (9MB) - Week 2: Health, wellbeing and disability
ZIP (807MB)|ZIP (no videos) (19MB) - Week 3: Access to health care and rehabilitation services
ZIP (904MB)|ZIP (no videos) (154MB)
- Week 1: Disability and its importance to the global development agenda
- Download individual resources
-
Video: Welcome to the course
Week 1: Disability and its importance to the global development agenda
Video: Welcome to week 1
Video & teaching slides: Why does disability matter globally?
- Video (MP4 74.9MB)
- Step text and transcript (PDF 80KB)
- Teaching slides (PDF 954KB)
- References (PDF 88KB)
Video: Why does disability matter – Personal perspectives
Article: Why does disability matter – individual case studies
Article: Why does disability matter to International Development? Part 1
Article: Nothing about us without us
- Article (PDF 122KB)
- References (PDF 188KB)
- Disability and the SDGs – How relevant is each SDG to disability? (PDF 632KB)
Video: What does disability mean – personal perspectives
Video: Attitudes to disability
Video: What does disability mean – a framework
Article: Measuring disability: Why would you want to and how do you do it?
Video: What is the relationship between impairments and disability?
Video: what are the common impairments related to disability?
- Video (MP4 42MB)
- Step text and transcript (PDF 81KB)
- Teaching slides (PDF 2MB)
- References (PDF 266KB)
Article: Why does impairment matter?
Video: Summary of week 1
Video: Welcome to week 2