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January Newsletter

Dear friends,

Happy new year! We hope that you had a wonderful holiday. We are very excited about all that 2025 will bring to us at ICED. Key highlights are the forthcoming Global Disability Summit in Berlin in April, which we are excited to attend. Another highlight will be the launch of the new Global Disability Inclusion Report, which many at ICED have contributed towards, in particular Morgon Banks. Finally, 2025 marks 15 years of ICED, and we are planning a range of events in the summer, to mark this milestone and reflect on our achievements and future plans. Watch this space!

We ended the year well at 2024 with good news on our doctoral students. Winston Chin passed the first part of his DrPH on “Disability in Nepal: The lived experience of physical disability and access to rehabilitation services in Dang District”. Danae Rodriguez’s PhD fully passed her PhD on inclusion of people with disabilities in the health system in Chile – congratulations Dr Rodriguez!

Empty diary? Join us for two seminars in January – January 20 Tom will present in person at LSHTM on January 20, 17:30-18:30. "Changing thinking about disability" by Tom Shakespeare.”  Then on January 28, 10-11 a.m. join us for the webinar on Building Resilience: Co-Developing Disability-Inclusive Climate-Resilient WASH Principles in Bangladesh

Read on for more ICED news!

With best wishes,

Hannah and Tom


PENDA logo 300

PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools. We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners. 

We have updated our website - so check it out to find more information about all our work!

This month we will be visiting Tanzania, to support the trial on how to reduce school-based violence for children with disabilities. We will also be going to Uganda, both to observe the community groups working to improve access to healthcare for people with disabilities, and to disseminate the findings from the Uganda Disability Inclusive Poverty Graduation programme.


Publications


Papers this month from ICED!

ICED PhD student Luthfi Azizatunnisa’ published her first PhD paper - Access to health insurance amongst people with disabilities and its association with healthcare use, health status and financial protection in low- and middle-income countries: a systematic review in the International Journal for Equity in Health. She found limited quality evidence, and will try to help fill the gap with the research from her PhD.

Veronika Reichenberger and team published the final paper from her recent PhD - Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study in Qualitative Health Research. You can see the participatory videos (9 minutes) created here – which were conceptualized and filmed by people with disabilities and their carers to share their experiences and stories regarding access to healthcare.

Tracey Smythe joined colleagues to publish Prioritizing infant mental health: a research-driven pathway for action in Nature Medicine. 

Hannah Kuper and Sara Rotenberg wrote the commentary Closing the mortality gap for people with disabilities in Lancet Public Health in response to the article by Yang et al on All-cause and cause-specific mortality inequalities between people with and without disability: a nationwide data linkage study in Australia.

Sarah Polack and colleagues published A situational analysis of rehabilitation policy and systems in Brazil in SSM- Health Systems, which used a structured framework to assess the strengths and weaknesses in the current situation in Brazil.

Tracey Smythe and colleagues also sought to explore the feasibility, acceptability, and contextual fit of a pathway for managing at-risk infants and their mothers in Ethiopia in the article “Strengthening implementation of integrated care for small and nutritionally at-risk infants under six months: pre-trial feasibility study.” In the journal Maternal & Child Nutrition.

Mark Carew and Tom Shakespeare and Antony Mugeere published Qualitative process evaluation of a disability-inclusive ultra-poor graduation programme in Uganda in the African Journal of Disability. In this paper they described the findings from the process evaluation of a disability-inclusive poverty graduation intervention implemented in Uganda. 

In November, Mark Carew was an invited speaker at the 2024 ENT UK Global Health Conference and he wrote a short article based on the presentation for the conference journal - “Nothing About Us, Without Us.” The importance of advocacy for disability-inclusive healthcare published in Global Health Journal.  


Upcoming Seminars and Events by LSHTM


ICED webinars:

  • January 20, 17:30-18:30. "Changing thinking about disability" by Tom Shakespeare." John Snow Lecture Theatre, LSHTM (in person only, recording released at later date).
  • January 30, 10-11 a.m. UK time. Building Resilience: Co-Developing Disability-Inclusive Climate-Resilient WASH Principles in Bangladesh. Chair: Rosie Green; Panel members: Jane Wilbur, Sari Kovats (LSHTM), Shahpara Newaz (icddr,b), Sabiha Ahmed (WVB) via Zoom.

    Other webinar series:
  • The Stellenbosch University Disability Research Hub empowers disability researchers by fostering collaboration and connection. We will resume our monthly webinar series on February 20th and continue creating opportunities to share insights, spark innovation, and build lasting partnerships in the field. Our programme will be in the next ICED newsletter and we look forward to you joining us!

You can find all our previous seminars (including the audio recordings and slides) here.


Other things of interest


The Lurie Institute at Brandeis University has launched two Disability Data Dashboards:


Work Experience Programme at ICED


We are currently not taking on new candidates however, you are welcome to complete an online application to register interest in interning with ICED. Please complete the application form.


Have you seen this?


Who benefits from accessibility? Everyone (30 second video)!

 
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Talks

ICED talks

​​​​​​​​​​Disability History Month - Disability Identity and Employment Policy: Past and Present

Our own Professor Tom Shakespeare and Dr Mark Carew spoke at an insightful event, "Disability Identity and Employment Policy: Past and Present". They explored the evolution of the social model of disability, disability rights, and workplace inclusivity. 

The session highlighted employment policies and discussed the challenges that remain for disabled people. Through open discussions with an expert panel, the auidence gained a deeper understanding of how historical perspectives and disability identity inform current policies and challenges.

Speakers:

  • Professor Tom Shakespeare
  • Dr Mark Carew
  • Dr Gareth Milward (external guest speaker)
  • Dr Helen Strongman (Event Chair)

Date: Wednesday 11th December 2024

Recording: Please click here to view the recording.

Work experience with ICED

Over the last few years, we have had candidates contribute to our research projects by undertaking surveys, writing systematic reviews, completing desk research and much more.

We are currently not taking on new candidates however, you are welcome to complete the application below for potential future openings.

The programme is for candidates to gain work experience in research within an academic setting. We will strongly consider the following applicants:

  • People with disabilities
  • An interest in pursuing a career in research
  • Preference given to people from LMICs
  • People holding a Bachelor’s degree (minimum), ideally a Master’s degree.

Please complete the application form for consideration.

Film

Disability-Inclusive Education and Employment

This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.  

The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation. 

Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.

Ubuntu

COVID-19 Support and Guidance

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Animated videos

Animated videos on child development and developmental disability

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

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View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

Film

Supporting Families Affected by Zika virus

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Global Community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and Resources

Press articles

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.

Download full course

Full course ZIP (2GB) |ZIP (no videos) (182MB)

Download content from each week
Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1


Video: Welcome to week 2